Case study:

Motor Neurone Disease Carers Champions

Funding Programme: Caring for Carers

Funding from the Bupa UK Foundation is enabling the Motor Neurone Disease (MND) Association to develop a training and coaching programme for volunteers to become Carers’ Champions.

The Motor Neurone Disease Association is recruiting and training 15 volunteers in 5 locations, helping and empowering them to identify local needs, develop local networks and deliver activities aiming to reach around 375 carers and former carers.

Through this project the Motor Neurone Disease Association will develop guidance and materials to help the Carers’ Champions signpost carers to available services; convene support meetings; organise social events and activities; and build and develop local online networks for peer-to-peer support.

The project will also help the Motor Neurone Disease Association to create a model to support the rollout of the Carers’ Champions role and to explore the potential for peer support among carers of people with motor neurone disease.